![]() Such issues include, but are not limited to, obtaining informed consent prior to using tissues from clinical sources if individually identifiable, the need for education of research volunteers about what may happen to biospecimens collected for future research, and the need for transparency about forms of compensation or whether or not gain-sharing from research results is possible or even appropriate.5 In this column, we call attention to efforts by Tuskegee University and the Commonwealth of Virginia to preserve the legacy of Henrietta Lacks and to the unfolding ethical and policy impacts of the Henrietta Lacks story. In today's human subjects and big data research landscape, the story has also brought to the limelight many bioethical issues worth considering. ![]() 1,2,3 Her story illustrates how intentions in the name of scientific and medical advancement can have unanticipated consequences such as privacy violations and consent breaches.4. Laypeople may be unfamiliar with Henrietta Lacks, but most scientists in the fields of human biology and medicine recognize Lacks and have encountered her "HeLa" cell line in biology laboratories and biomedical research. Of her descendants cannot even afford healthcare. Reaping the rewards of Lacks’ cell line for decades, many Remains that while the pharmaceutical industry has been Single cell is microscopic and almost weightless. More than 350 million feet, which is astounding since a Metric tons if lined up end-to-end, they would measure Itd tie in nicely to the book and also allow for discussion of various species. Scientists estimate that if all of the HeLa cells everĬultured could be weighed, they would exceed 50 million Here, he lays out a case for the HeLa cells being a new & distinct species. have helped with some of the most importantĪdvances in medicine: the polio vaccine, chemotherapy,Ĭloning, gene mapping in vitro fertilization” (SklootĢ010, 2). Space missions to see what would happen to cells in zero “bought, sold, packaged, and shipped by the trillions to It is being translated into more than twenty-five. It was chosen as a best book of 2010 by more than sixty media outlets, including Entertainment Weekly, People, and the New York Times. Since her deathĪt the age of thirty-one in 1951, Lacks’ cells have been Skloots debut book, The Immortal Life of Henrietta Lacks, took more than a decade to research and write, and instantly became a New York Times bestseller. Removed and cultured by researchers at John Hopkins originated fromĪ sample of Lacks’ cancerous cervical tissue which was That came to be known as the HeLa strain. The first two letters of her first and last names). Line used in science, HeLa (an abbreviation consisting of The African American woman behind the most prolific cell Immortal Life of Henrietta Lacks, journalist Rebecca SklootĮxposes the heretofore untold story of Henrietta Lacks, ![]() In her meticulously researched nonfiction investigation The
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